I'm late, again!!

Good grief!

Time flies when we are having fun. (or something like that). Apologies again for the delay in posting. This is an update from 1.5 weeks ago. (This next Tuesday will be another round of chemo)

Labs continue good- in fact Bridge's Hemoglobin is up to 14.5! So she is no longer a ghost, but nice and pink. All other labs remain normal! Her Chest Xray looked even better to us than the Xray she had done in March. Nodes appear even smaller!!! She was a little worried- as the night sweats returned- however- they have stopped and we (including Doc) attribute it to hormones. These wonderful things can go a bit wonky with chemo- which means more tears, more anxiety, some sleepless nights, etc.

She had her chemo- the anti nausea meds worked great again!! However, before the chemo even got started, she threw up- she calls it anticipatory nausea. So, now the plan is to have a Compazine before we go to the hospital. Hopefully, that will help. She tolerated the meds without any problem afterward. That was a good day.

Next day, she had her White Blood cell booster- and then had the bone pain afterward, but that is manageable.

So, we have the month of May to get through- equals two chemo sessions and then a PET scan to see what the next step is. That will be June 1.

As to Social Security/Medicaid, her records went through SS review, and were forwarded on to QA committee- SS cannot tell me a decision (yay or nay), because her file is in QA. We will only know when that committee makes a decision. How long/?? ONLY another month- How will we know- most likely a letter. But If I don't hear/get anything by week 5, then give them a call.
Now you know why government is messed up (That would be government in general- no political statements here). They require more paperwork than GOD, and take more time than GOD to make a decision. If denied by SSA, then and ONLY then can we do the same process through Medicaid (the state government). SO the clock starts ticking all over again. When we first applied for SSA benefits, it stated they take between 90-120 days to make a decision- they weren't kidding, the 120 days is up end of May. Same timeline for Medicaid- yes, the clock starts ticking when SSA decides. So we may be well done with treatment and know nothing. In the meantime, the bills pile up- Bridget figures she owes the hospital 9 of her First born children- maybe she can borrow some from the total loser OCTOMOM. (who by the way, has no trouble whatsoever getting benefits from the government to have more and more and more kids (can we say free medical care to the toon of 9 or so million, plus a new house, lots of attention,.... on and on and on, I am SURE you get my drift).

Bridget is excited (NOT) that it will probably be nice on Chemo day. The last three or so treatments the days have been nice. However, its the time after that that sucks beans. I will be excited if it does anything but SNOW on chemo day. I don't mind the daily drive to Helena to work, however, when it takes more than 1.5 hours to get there and I have to white knuckle it all the way and it's MAY tomorrow- I am so over the snow. I know its good for plants, prevents fires in the summer and generally is good for the planet, but when winter extends into Spring and it seems like its never ending, it gets old.

Ah well, I can see I am tired and frustrated by a lot of things. I probably am boring you to tears now, so I will close.
I can't promise to get these blogs more timely- but I can promise to TRY harder to get them timely. Keep your fingers crossed. ....

Denise