Tuesday, May 5, 2009

Bummed

Hey all-
I am on time today!
Bridget had chemo today, labs continue good. Hemoglobin is 14.2, she is pink still. The only thing out of normal was her potassium was a little low- 3.4, so I'll beef her up with bananas. She took her Compazine before we took off for the hospital- so no nausea before OR after chemo today!
Apparently, she is tasting the first Chemo med- slight funky taste, different than the saline that she notices if she does not have gum on hand. Nothing to make her overly nauseated, but still noticeable.
She did get sleepy but less so today.
So here is the plan- this was treatment 7, she has one more and then on June 1, the PET scan.
If the PET scan shows negative, she will have a few more rounds of chemo. (Unspecified on length of time) and be done.
IF the PET scan shows stuff, she goes out to Seattle for stem cell transplant.
Initially, he talked chemo, then radiation, then stem cell. However, with her being Stage 4b, the Standard of Care is no radiation. It is figured that would lead to more/different cancers down the road. So standard of Care is stem cell.
I left at noon to get Wendy's chili, went home to grab some stuff, and picked up the mail.
Here is the bummed part-
We got the decision from SSA today- denied. They don't find her qualified for disability. They realize her illness is severe and limiting but not disabling over a one year period- so she does not get benefits. Lots of nice prose.... yadda yadda and we can appeal. Quite depressing.
Bridget (looking on the "bright" side) then indicated- well, if I need a stem cell transplant- SSA has to give me assistance.

As for me, I am praying for complete healing. I guess we'll figure out how to pay the HUGE bills later.

Well, chat later.

Denise